Access to phenotypical data
Policy for phenotypical data access
Phenotypical data are available only for research projects, that have obtained approval from independent ethics committee, if in the study data will be investigated in context of genetics, then approval must be obtained form Central Medical Ehics Committee.
Data are available only in context of research that donor have not objected in informed consent form. Personal data are not available it is stored in State population genome registry.
For data access Data/Material Transfer Agreement is concluded by the involved insitutions. About access procedures, please, contact responsible presonnel of Genome Database: firstname.lastname@example.org, +371 67473083 (during working hours).
During recruitment the following data about participants are recorded:
|Group of the data||Collection||Theme||Question or series of questions|
|Health and hereditary questionnaire||Interview-based, self-reported||Sociodemographic data||Sex|
|Year of birth|
|Place of birth|
|Level of education|
|Participant health history||History of oncological disease|
|History of heart and cardiovascular diseases|
|History of endocrine and chronic diseases|
|Use of medicine||Regularly used medication|
|Allergies and symptoms||Allergies|
|Harmful environmental and workplace factors|
|Products and beverages|
|Family sociodemographic data||Place of birth|
|Family socioeconomic status||Accomodation and living|
|Family health history||History of oncological disease|
|History of hearth and cardiovascular disease|
|History of endocrine and chronic disease|
|Physical measurements||Measured or self-reported||Antropometric measurements||Height|
|Medical diagnosis||Doctor's diagnosis||ICD-10 diagnosis codes||Diagnosis on the day of recruitment|
For specific research projects data for state medical documentation can be accessed for participants of Genome Database in accordance with August 4th, 2015, Regulations of Cabinet of Ministers "Procedures for use of patient medical data in research". Pesonnel of Genome Database can consult on access procedures.